NWHIC Organizations Directory -- Record Details

Association for Glycogen Storage Disease

Mission statement:

The Association for Glycogen Storage Disease is a parent and patient oriented support group that is advised by a national, experienced group of medical professionals. The AGSD was established in 1979 in order to create an organization which would be a focus for parents of and individuals with GSD to communicate, share their successes and concerns, share useful findings, provide support as needed, create an awareness of this condition for the public, to stimulate research in the various forms of glycogen storage diseases and have the results communicated to the parents, affected individuals and the public as soon as possible. Hollie Swain is the founder and current President of our group, and the AGSD office is located in her home.

Contact Information:

Association for Glycogen Storage Disease
P.O. Box 896
Durant IA 52747

Internet address: http://www.agsdus.org/

Phone number(s):

(563) 785-6038

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• LIVER DISEASES AND DISORDERS

NWHIC record number O-4647