NWHIC Organizations Directory -- Record Details

Stickler Involved People

Mission statement:

The stated purpose of SIP is to edu­cate and give support to people affected by Stickler Syndrome including but not limited to: (a) Periodic meetings to identify matters of mutual concern, to become aware of important social issues (b) Conducting educational activities to promote the achievements of the objectives of members. (c) Establishing working relationships and adequate communication with other public or privates local, state or national organizations in pursuit of common goals. (d) Communicating to public officials the mutual concerns of the majority of the group. (e) Collecting and disseminating of information concerning Stickler syndrome and related concerns.

Contact Information:

Stickler Involved People
15 Angelina Drive
Augusta KS 67010

Internet address: http://www.sticklers.org/sip2/

Phone number(s):

(316) 775-2993

Related topics:

These topics may help you find additional organizations. Click any of these links to do an automatic search.

• CRANIOFACIAL DISORDERS
• GENETIC DISORDERS
• RARE DISEASES AND DISORDERS

NWHIC record number O-2642