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[1] and data coordination centers that provide patient tracking, standardized clinical and mental health baseline screenings, long-term health monitoring and analysis for responders, rescue and recovery workers, patient data management and clinical referral services.  While it has been challenging to implement a national program for responders who do not live in the New York City metro area monitoring has been achieved through a national network of clinics that has a subcontract with Mount Sinai.  The Medical Monitoring program has conducted 33,251 initial examinations and 17,453 follow up examinations since its inception in 2002.

In 2006, $75 million was provided to further support existing HHS WTC programs and provide treatment to responders, rescue and recovery workers.  Prior to the allocation of Federal dollars for treatment, responders received treatment through traditional insurance plans and/or through various philanthropic avenues, including the American Red Cross WTC Health Effects Treatment Program.  The American Red Cross program funds are projected to end in 2007.  To date, some grantees have exhausted their Red Cross funds and others still have some money remaining.  Federal funding allocated specifically to treatment of responders through the consortium of clinical centers (approximately $50 million) has been disbursed and is being used or will be used to treat responders once the Red Cross funding is exhausted.  NIOSH has worked closely with the American Red Cross to ensure a seamless transition in funding treatment for WTC responders.  NIOSH has also granted funds to the NYC Police Foundation Project COPE ($3 million) and the Police Organization Providing Peer Assistance (POPPA) ($1.5 million) to provide mental health services and counseling for police officers who assisted in the response and recovery effort.  In addition, funds have also been allocated to support the existing WTC Medical Monitoring Program ($8 million), the WTC Health Registry ($9 million) and provide program coordination and direction ($3.5 million).

It is important to recognize that our grantees have been operating with FY 2006 Federal resources for responder treatment for less than four months and have just delivered the first quarter of data to HHS.    

HHS and HHS grantees recognize the importance of scientific or peer review to help ensure that reliable and valid assessments are made regarding any trends and patterns in conditions associated with WTC exposure. The WTC Medical Monitoring Program and WTC Health Registry have reported on the symptomatology and conditions being reported and seen among their respective populations, such as pulmonary function abnormalities, worsened respiratory symptoms and serious psychological distress (SPD). These findings have been reported in various peer-reviewed journals, including the Morbidity & Mortality Weekly, the American Journal of Respiratory and Critical Care Medicine and Environmental Health Perspectives.

On September 11, 2006, Secretary Leavitt announced that scientific research suggesting adverse health effects among WTC responders necessitated a thorough review of available health care resources and scientific understanding.  The Secretary then formed an internal Task Force, which I Chair as Assistant Secretary for Health.  Dr. John Howard, Director of NIOSH and HHS WTC Programs Coordinator, is the Task Force Vice-Chair.  We have been tasked with providing the Secretary with an analysis of data, options on Federal policies, and financing related to WTC-associated health conditions and WTC responder health care needs.  The WTC Task Force is comprised of top science and health policy experts throughout the Department and began meeting in October 2006. 

The Task Force has worked primarily in two areas of analysis via two subcommittees.  The Science subcommittee has looked specifically at the process by which HHS determines which health effects are directly related to 9/11 exposure and what type of scientific studies should be conducted to better understand the long-term health effects of 9/11.  The Finance subcommittee was tasked with providing an analysis of long-term monitoring and treatment options.  The Task Force’s analysis will be shared with the Secretary soon.

Overall, over $778 million in Federal appropriations have been spent or obligated to assist in WTC related health consequences since September, 2001.  Throughout the spending of Federal money, the Federal government has continued to collect information pertaining to 9/11 health effects and is committed to providing compassionate and appropriate support to responders affected by World Trade Center exposures following the attacks.  The FY 2008 Budget request includes $25 million for the continuation of treatment for WTC responders.  The Administration intends to review the grantee data that has been submitted for the Task Force’s analysis.

Thank you again for the opportunity to testify.  I would be happy to answer any questions you may have

[1] The consortium consists of the Fire Department of New York, Mt. Sinai School of Medicine, University of Medicine and Dentistry of New Jersey -Robert Wood Johnson Medical School, Research Foundation of the City University of New York, New York University School of Medicine, and the Research Foundation of the State University of New York.

Last revised: August 29,2008