The National Women's Health Information Center - womenshealth.gov
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NWHIC Organizations Directory -- Record DetailsEhlers-Danlos National FoundationMission statement:Nancy Hanna Rogowski created the Ehlers-Danlos National Foundation (EDNF) in 1985. The primary goal of EDNF is to provide emotional support and updated information to those affected by Ehlers-Danlos syndrome and to their family members. In addition, EDNF serves as a vital information link to and from the medical community. It is our desire to inspire and support research in the field of connective tissue disorders-specifically Ehlers-Danlos syndrome. Contact Information:Ehlers-Danlos National Foundation Internet address: http://www.ednf.org/ Phone number(s):
(213) 368-3800 Fax number:(213) 427-0057 Related topics:These topics may help you find additional organizations. Click any of these links to do an automatic search. NWHIC record number O-2383 |
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