NWHIC Organizations Directory -- Record Details

National Niemann-Pick Disease Foundation

Mission statement:

Our primary goals are to: Promote medical research into the cause of NPD in order to eventually find a cure; Provide medical and educational information to assist in the correct diagnosis and referral of children with NPD; Provide support to families of NPD patients; Facilitate genetic counseling for parents who are known carriers of NPD; Encourage the sharing of research information among scientists; Support legislation that positively affects patients and families with NPD.

Contact Information:

National Niemann-Pick Disease Foundation
PO Box 49, 401 Madison Ave Suite B
Ft. Atkinson WI 53538

Internet address: http://www.nnpdf.org/

Phone number(s):

(920) 563-0930
(877) 287-3672 (CURE-NPC)

Fax number:

(920) 563-0931

Related topics:

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• BIRTH DEFECTS

NWHIC record number O-2782