NWHIC Organizations Directory -- Record Details

Dysautonomia Foundation, Inc.

Mission statement:

The Dysautomia Foundation was founded in 1951 by parents of afflicted children to raise funds to support research to find means of controlling and curing familial dysautonomia, and to provide information on the disease to families, the lay population, and medical professionals. Families dysautomia (Riley-Day syndrome) is a rare genetic disease primarily afflicting Jewish children of Ashkenazi or Eastern European heritage. A malfunction of the autonomic nervous system, it poses severe physical, emotional, and social problems for the afflicted patients.

Contact Information:

Dysautonomia Foundation, Inc.
315 West 39th Street, Suite 701
New York NY 10018

Internet address: http://www.familialdysautonomia.org/

Phone number(s):

(212) 274-1066

Fax number:

(212) 279-2066

Related topics:

These topics may help you find additional organizations. Click any of these links to do an automatic search.

• DYSAUTONOMIA
• NEUROLOGICAL DISEASES AND DISORDERS
• RARE DISEASES AND DISORDERS

NWHIC record number O-2352