NWHIC Organizations Directory -- Record Details

Cornelia de Lange Syndrome Foundation

Mission statement:

The Cornelia de Lange Syndrome Foundation is a family support organization which exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.

Contact Information:

Cornelia de Lange Syndrome Foundation
302 West Main Street. #100
Avon CT 06001

Internet address: http://www.cdlsusa.org/

Phone number(s):

(860) 676-8166
(860) 676-8255
(800) 223-8355
(800) 753-2357

Fax number:

(860) 676-8337

Related topics:

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• BIRTH DEFECTS

NWHIC record number O-1460