NWHIC Organizations Directory -- Record Details

Sotos Syndrome Support Association

Mission statement:

•A social support environment for professionals and families of individuals affected by Sotos Syndrome so they can meet, exchange ideas and help one another cope with the condition. An understanding of the condition through education. •A quarterly newsletter for members to network ideas, articles, and inspirations. An annual meeting in which to meet, organize, and discuss association business. An annual conference for professionals and families to hear experts in genetics, neurology, psychology, and education. An opportunity for professionals working with individuals affected by Sotos Syndrome to collect data for research and to meet colleagues.

Contact Information:

Sotos Syndrome Support Association
P.O. Box 4626
Wheaton IL 60189

Internet address: http://www.well.com/user/sssa/

Phone number(s):

(630) 682-8815
(888) 246-7772

Related topics:

These topics may help you find additional organizations. Click any of these links to do an automatic search.

• NEUROLOGICAL DISEASES AND DISORDERS
• RARE DISEASES AND DISORDERS
• SUPPORT GROUPS

NWHIC record number O-2623