NWHIC Organizations Directory -- Record Details

Ehlers-Danlos National Foundation

Mission statement:

Nancy Hanna Rogowski created the Ehlers-Danlos National Foundation (EDNF) in 1985. The primary goal of EDNF is to provide emotional support and updated information to those affected by Ehlers-Danlos syndrome and to their family members. In addition, EDNF serves as a vital information link to and from the medical community. It is our desire to inspire and support research in the field of connective tissue disorders-specifically Ehlers-Danlos syndrome.

Contact Information:

Ehlers-Danlos National Foundation
3200 Wilshire Blvd Suite 1601, South Tower
Los Angeles CA 90010

Internet address: http://www.ednf.org/

Phone number(s):

(213) 368-3800

Fax number:

(213) 427-0057

Related topics:

These topics may help you find additional organizations. Click any of these links to do an automatic search.

• GENETIC DISORDERS
• MUSCULOSKELETAL DISEASES AND DISORDERS

NWHIC record number O-2383