The National Women's Health Information Center - womenshealth.gov
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NWHIC Organizations Directory -- Record DetailsAssociation for Glycogen Storage DiseaseMission statement:The Association for Glycogen Storage Disease is a parent and patient oriented support group that is advised by a national, experienced group of medical professionals. The AGSD was established in 1979 in order to create an organization which would be a focus for parents of and individuals with GSD to communicate, share their successes and concerns, share useful findings, provide support as needed, create an awareness of this condition for the public, to stimulate research in the various forms of glycogen storage diseases and have the results communicated to the parents, affected individuals and the public as soon as possible. Hollie Swain is the founder and current President of our group, and the AGSD office is located in her home. Contact Information:Association for Glycogen Storage Disease Internet address: http://www.agsdus.org/ Phone number(s):
(563) 785-6038 Related topics:These topics may help you find additional organizations. Click any of these links to do an automatic search. NWHIC record number O-4647 |
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