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A New Era In Newborn Screening -
Saving Lives, Improving Outcomes
Public Health Training Network Satellite
Broadcast & Webcast
Originally aired September 19, 2002
Continuing Education Credit available until
September 19, 2008
View Webcast
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Hear stories from four families whose children's lives were saved from
life-threatening diseases by newborn screening, early diagnosis, and effective
management. Learn how these children have thrived through actions taken by informed parents working with medical
care teams. Meet a star student and athlete with homocystinuria and hear from a mother whose energetic little boy
has medium-chain acyl-coA dehydrogenase (MCAD) deficiency. We'll hear from a
woman with Phenylketonuria (PKU) who had a healthy baby because she followed a
specific diet and we'll visit children with sickle cell disease who are leading
active lives due to early detection and good management. We'll witness the progress of a heelstick
blood spot from the hospital, to the laboratory, to the follow-up process. Pediatricians and experts in the field of
medical genetics will speak on the diagnosis and management of children with
disorders detected by newborn screening programs and the challenges that yet
remain. By the end of the program, our
panelists will have explored multiple areas of the newborn screening program in
the United States, from past and current practices to
working toward the development of a national agenda.
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Goals
To improve recognition, detection, and diagnosis leading to early intervention
and effective management of metabolic disease, endocrine disorders, and
hemoglobinopathies in newborns.
Objectives
After viewing this program, participants will be able to:
- Describe the evolution of newborn screening programs in the U.S.
- Discuss the current newborn screening environment and the national agenda.
- Identify newly recognized metabolic disorders for which screening tests are now available.
- Discuss the effect of disorders detected by newborn screening on affected children and families.
- Identify collection, handling and shipping factors that affect test results.
- List three examples of newborn screening tests.
- Explain the significance of an effective follow-up component in the newborn screening system.
- Discuss the diagnosis and management of children detected by these programs.
Target Audience
This program is designed for physicians, nurses, laboratorians, and other health care professionals serving
newborns and their parents in physician offices, hospitals, clinics, and public
health settings. It should also of interest to the general public, parents, and
policy makers.
Program Materials
Program materials are now available by visiting
http://wwwn.cdc.gov/dls/genetics/
Webcast Information
Click here for archived webcast information.
Faculty
Paul Fernhoff, MD, FAAP, FACMG,
Associate Professor of Pediatrics, Emory University
Medical Director, Emory Genetics Laboratory Visiting Scientist
National Center on Birth Defects and Developmental Disabilities,
Centers for Disease Control and Prevention
Harvey L. Levy, MD,
Director of Biochemical Genetic Research
Senior Associate in Medicine (Genetics)
Children's Hospital Boston
Kenneth Pass, PhD
Chief, Laboratory of Genetic Services
Deputy Director, Division of Genetic Disorders
Wadsworth Center
New York State Dept. of Health
Michele A. Lloyd-Puryear, MD, PhD
Chief, Genetic Services
Division of Services for Children with Special Health Needs
Maternal and Child Health Bureau
Health Resources and Services Administration
Sharon Quary, MS
Genetic Counselor/Coordinator
Newborn Screening Follow-up Program
Division of Medical Genetics/Dept. of Pediatrics
Emory University School of Medicine
Registration and Viewing Instructions
Visit the Training and
Continuing Education Online website at http://www2a.cdc.gov/TCEOnline/
to register and receive credit for this
course.
You must use the online system to register and to receive continuing education credit
for this program.
If you have
questions about registration, call 1-800-41-TRAIN.
Videotapes/CD-Rom
To order a copy of this broadcast, call the Public Health Foundation
at 1-877-252-1200(US) or 301-645-7773 (International) 9:00am - 5:00pm EDT
or email them at info@phf.org. You can also visit their online bookstore
at http://bookstore.phf.org/prod231.htm. When emailing a request for a
videotape, please indicate A New Era in Newborn Screening-Saving Lives,
Improving Outcomes in the subject line.
Continuing Education Credit
Participants can receive credit until September 19, 2008 for the archived webcast, videotape and CD-Rom.
Please refer to the following course numbers to receive continuing education credit:
- CB3063-CD-Rom
- VC0049-Videotape
- WD0002-Webcast on demand
The Centers for Disease Control and Prevention is accredited by the
Accreditation Council for Continuing Medical Education (ACCME)
to provide continuing medical education for physicians.
The Centers for Disease Control and Prevention designates
this educational activity for maximum of 2.0 category
1 credits toward the AMA Physician's Recognition Award.
Each physician should claim only those credits that he/she
actually spent in the activity.
This activity for 2.4 contact hours is provided by the Centers
for Disease Control and Prevention, which is accredited as a provider
of continuing education in nursing by the American Nurses Credentialing
Center's Commission on Accreditations.
The Centers for Disease Control and Prevention is a designated
provider of continuing education contact hours (CECH) in health
education by the National Commission for Health Education Credentialing,
Inc. This program is a designated event for the CHES to receive 2.0
Category I contact hours in health education, CDC provider number GA0082.
The Centers for Disease Control and Prevention has been
approved as an Authorized Provider of continuing education
and training programs by the International Association for
Continuing Education and Training and awards 0.2 Continuing
Education Units (CEUs).
Sponsors
The Centers for Disease Control
and Prevention
Association of Public Health
Laboratories
National Laboratory Training
Network
March of Dimes
National Newborn Screening and Genetics Resource Center
American College of Medical Genetics
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This page last reviewed: April 23, 2003
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