Case Studies, Curriculum and Training Modules (last accessed 2/2008)

• Human Genetic Epidemiology Network (HuGENet™) Case Studies
  Developed by NOPHG, a collection of on-line presentations designed to sharpen your epidemiological skills and enhance your knowledge of the genetics of chronic diseases. Developed by the National Office of Public Health Genomics at the CDC (2006).

• Human Genetics Training Course
  A curriculum developed by University Illinios at Chicago College of Medicine, Department of Molecular Genetics.

• Introductory Genetics
  Provides an introductory course that covers the basic concepts of genetics. Developed by the Center for Human Genetics, Duke University Medical Center.

• A Practice-Base Genetics Curriculum for Nurse Educators
  Provides an innovative tool to support the integration of human genetics into nursing curricula. Developed by the Foundation for Blood Research (2003).

• Ethics and Public Health: Public Health Genetics-Module 8: Screening Programs and Individual Testing/Counseling
  One of 9 modules in an ethics and public health model curriculum (2003).

• Genetics in Primary Care
  A series of teaching cases, developed to be representative of patients seen in primary care, while also allowing for the demonstration of genetics issues and principles (2001).

Family History Tools (last accessed 2/2008)

• American Heart Association
  Offers on-line tool that records family history information for stroke, heart attack and diabetes.

• American Medical Association
  Electronic questionnaires to help you organize and print your family history.

• American Society of Human Genetics
  Presents information about collecting your family history and recording it in a type of family tree called a "pedigree”.

• Cancer Research and Prevention Foundation
  Provides a form to help you collect information about your family history of colorectal cancer.

• Diabetes PHD
  Offered by the American Diabetes Association to assess your risk for diabetes and several other diseases and to illustrate  how personal health decisions can affect your risk.

• Genetic Health
  Offers information about genetics and your health.

• Great American Health Check
  Offered by the American Cancer Society to  provide a free, personalized health action plan that can be shared with your doctor.

• Health Tree
  Provides an on-line family history tool by Norwich Union that helps you record family history information and learn about common hereditary conditions .

• March of Dimes
  Provides a form to help you collect family history information.

• National Heart, Lung and Blood Institute
  Provides a tool to calculate your risk of having a heart attack in the next 10 years.

• National Society of Genetic Counselors
  Provides a downloadable form with instructions for collecting and recording family history information.

• Your Disease Risk
  Sponsored by the Harvard Center for Cancer Prevention to help you determine your risk for 5 different diseases.

• Genetic and Rare Disease Information Center
  Established by the National Human Genome Research Institute and the Office of Rare Diseases to answer questions from the general public (in English or Spanish) about genetics and rare diseases.

• NIH’s National Genome Research Institute
  Offers online resources for family medical history.

• U.S. Surgeon General's Family History Initiative
  Provides a free web-based tool that helps users organize family history information and then print it out for presentation to the family doctor. In addition, the tool helps users save their family history information to their own computer and even share family history information with other family members.

• FORCE: Facing Our Risk of Cancer Empowered
  FORCE is a nonprofit organization for women who are at high risk of getting breast and ovarian cancers due to their family history and genetic status, and for members of families in which a BRCA mutation may be present.

• Mayo Clinic
  Presents information on how to compile your family history (11/2005).

Genetic Epidemiology Tools (last accessed 2/2008)

• Alphabetical list of genetic analysis software

• Human Genetic Epidemiology Network (HuGENet™) Case Studies
  Developed by NOPHG, a collection of on-line presentations designed to sharpen your epidemiological skills and enhance your knowledge of the genetics of chronic diseases. Developed by the National Office of Public Health Genomics at the CDC.

• Quantitative Genetic Epidemiology Tools
  Offered by the Fred Hutchinson Cancer Institute and includes Estimating Equation Software and a Pedigree Data Processing System.

• Human Genome Epidemiology: An Introduction
  A video tape and slide set of the opening remarks presented by Muin J. Khoury, MD, PhD at the Human Genome Epidemiology Workshop entitled, "Scientific Foundation for Using Genetic Information to Improve Health and Prevent Disease" (2002).

Genomic Competencies (last accessed 2/2008)

• NCHPEG Core Competencies in Genetics Essential for all Health Care Professionals 

• CDC Genomic Competencies for the Public Health Workforce

Other Training Links (last accessed 2/2008)

• Genetic Educational Materials Database (GEMS)
  Searchable listing of public health genetics policy documents and clinical genetics educational materials.

• Genetics and Public Policy Center
  Berman Bioethics Institute Johns Hopkins University.

• Information for Genetic Professionals
  Provides clinical, research, and educational resources for genetic counselors, clinical geneticists, and medical geneticists.

• National Coalition for Health Professional Education in Genetics (NCHPEG)
  A national effort to promote health professional education and access to information about advances in human genetics.

• Genetic and Rare Conditions Site
  Information on genetic conditions and birth defects for professionals, educators, and individuals. From the University of Kansas Medical Center.

• Genetics Educational Center
  A collection of educational materials and other resources for educators interested in human genetics and the human genome project and is sponsored by the University of Kansas Medical Center.

Provides link to non-governmental sites and does not necessarily represent  the views of the Centers for Disease Control and Prevention.