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ACCE: A CDC-Sponsored Project Carried Out by the Foundation for Blood Research
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Monday, September 27th
 
8:30 - 8:45 am Welcome and Aims of the Short Course

Muin Khoury
Presentation :  PDF Link here to download free  Adobe Reader (360KB)|need free Flash player to view Flash

8:45 - 9:15 am Issues Surrounding Genetic Testing Linda Bradley
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9:15 – 9:45 am

Epidemiologic Foundation for the Assessment of Genetic Tests

Julian Little
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9:45 – 10:15 am

The ACCE Model Process

James Haddow
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10:15 – 10:30 am Break
Disorder and Setting
10:30–11:00 am Disorder/Setting Workshop: Break-out groups (Group designated by the color dot on your name tag)  
11:00-11:15 am Disorder/Setting: Discussion and
Questions
Glenn E. Palomaki
Analytic Validity
11:15 - 12:00 Analytic Validity: HFE , CFTR & Factor V Leiden Testing Glenn E. Palomaki
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12:00 - 1:15 pm Lunch
Clinical Validity
1:15 - 1:45 pm

Cystic Fibrosis Carrier Testing

Sue Richards
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1:45 - 2:15 pm

BRCA 1/2 Mutations and Breast Cancer:
An Integrated Approach Using Four Epidemiologic Parameters

Monica McClain
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2:15 - 2:45 pm A Breast/Ovarian Cancer Dataset Glenn E. Palomaki
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2:45 - 3:00 pm

Colorectal Cancer Testing

Sue Richards
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3:00 - 3:15 pm Questions
3:15 - 3:30 Break
Clinical Utility
3:30 - 4:00 pm Clinical Utility Overview Glenn E. Palomaki
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4:00 - 4:30 pm Evaluating the Health Outcomes from Newborn Screening for Cystic Fibrosis

Scott Grosse
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4:30 - 5:00 pm Family History as a Screening Tool for Public Health and Preventive Medicine Paula Yoon
Presentation : PDF Link here to download free  Adobe Reader (618KB)|need free Flash player to view Flash
Tuesday, September 28th
8:30 - 9:00 am Oversight of Genetic Testing Joe Boone
Presentation : PDF Link here to download free  Adobe Reader (564KB)|need free Flash player to view Flash
9:00 - 9:30 am Post-Implementation Data Collection and Monitoring Linda Bradley
Presentation : PDF Link here to download free  Adobe Reader (221KB)|need free Flash player to view Flash
9:30 - 10:00 am

Genetic Testing for Breast and Ovarian Cancer Susceptibility: Investigation of a Direct-to-Consumer Marketing Campaign

Melanie Myers
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10:00 - 10:15 am

Break

10:15 – 10:45 am Economic Evaluation of Screening for Hereditary Hemochromatosis Scott Grosse
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Ethical, Legal & Social Implications
10:45 –11:15 am Ethical, Legal & Social Implication of Genetic Testing for Breast Cancer Heidi Nelson, Laurie Huffman
Development of Policy
11:15 - 11:45 Translating Scientific Evidence into Practice and Policy: Challenges and Opportunities Peter Briss
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11:45 - 12:15 pm Questions
12:15 - 12:30 pm Closing Comments & Adjourn
Page last updated: December 11, 2007
Content Source: National Office of Public Health Genomics