NWHIC Organizations Directory -- Record Details

Support Organization for Trisomy 18, 13 and Related Disorders

Mission statement:

S.O.F.T. is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and related chromosomal disorders. Support is provided during prenatal diagnosis, the child's life and after the child's passing. S.O.F.T. is committed to respect a family's personal decision - in alliance with a parent / professional partnership.

Contact Information:

Support Organization for Trisomy 18, 13 and Related Disorders
2982 South Union Street
Rochester NY 14624

Internet address: http://www.trisomy.org/

Phone number(s):

(585) 594-4621
(800) 716-SOFT (7638)

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• RARE DISEASES AND DISORDERS

NWHIC record number O-2520