Muscular Dystrophy Association - MDA
Organization URL(s)
mda@mdausa.orgwww.mdausa.org
Other Contact Information
MDA Headquarters
3300 East Sunrise Drive
Tucson,
AZ 85718-3208
800-572-1717 (Voice - Toll-free)
520-529-2000 (Voice)
520-529-5300 (FAX)
Description
The Muscular Dystrophy Association, (MDA), is a voluntary health agency aimed at conquering more than 40 neuromuscular diseases that affect more than a million Americans. The diseases in MDA's program include nine forms of muscular dystrophy, amyotrophic lateral sclerosis, (Lou Gehrig's disease)spinal muscular atrophy, Charcot-Marie-Tooth disease,and other neuromuscular conditions. MDA has nearly 200 local offices across the country. It conducts program of worldwide research, comprehensive medical and community services, and far-reaching professional and public education. Services include medical examinations at a network of some 235 hospital-affiliated MDA clinics, support groups, MDA summer camps for youngsters and assistance with wheelchair purchase and communication devices.
Online Resources
- 101 Hints to Help-with-Ease for Patients with Neuromuscular Disease
http://www.mdausa.org/publications/101hints/ - ALS Research and Clinical Centers
http://www.mdausa.org/clinics/alsserv.html - Facts About Amyotrophic Lateral Sclerosis (ALS)
http://www.mdausa.org/publications/fa-als.html - Facts About Charcot-Marie-Tooth Disease and Dejerine-Sottas Disease
http://www.mdausa.org/publications/fa-cmt.html - Facts About Duchenne and Becker Muscular Dystrophies (DMD and BMD)
http://www.mdausa.org/publications/fa-dmdbmd.html - Facts About Facioscapulohumeral Muscular Dystrophy
http://www.mdausa.org/publications/fa-fshd.html - Facts About Friedreich's Ataxia
http://www.mdausa.org/publications/fa-fried.html - Facts About Inflammatory Myopathies
http://www.mda.org/publications/fa-myosi.html - Facts About Limb-Girdle Muscular Dystrophy (LGMD)
http://www.mdausa.org/publications/fa-lgmd-qa.html - Facts About Metabolic Diseases of Muscle
http://www.mdausa.org/publications/fa-metab.html - Facts About Mitochondrial Myopathies
http://www.mdausa.org/publications/mitochondrial_myopathies.html - Facts About Myasthenia Gravis, Lambert-Eaton Myasthenic Syndrome & Congenital Myasthenic Syndrome
http://www.mdausa.org/publications/fa-mg.html - Facts About Myopathies
http://www.mdausa.org/publications/fa-myop.html - Facts About Myotonic Muscular Dystrophy
http://www.mdausa.org/publications/fa-mmd.html - Facts About Rare Muscular Dystrophies: Congenital, Distal, Emery-Dreifuss and Oculopharyngeal Muscular Dystrophies
http://www.mdausa.org/publications/fa-rareMD.html - Facts About Spinal Muscular Atrophy (SMA)
http://www.mdausa.org/publications/fa-sma.html - Genetics and Neuromuscular Diseases
http://www.mdausa.org/publications/genetics.html - Journey of Love: A Parent's Guide to Duchenne Muscular Dystrophy
http://www.mdausa.org/publications/journey/ - Muscular Dystrophy Association (MDA) Clinics and Services
http://www.mda.org/clinics/
Print Resources
MDA resource materials include a variety of publications and videotapes. Serial publications: Quest is a bi-monthly magazine with circulation of 125,000 reports on the latest research findings and issues of living with a neuromuscular disease. The MDA/ALS Newsmagazine is a monthly newsletter for those who have amyotrophic lateral sclerosis (ALS) and their families/caregivers. Annual Report--information on MDA programs, research activities, medical services, fund-raising, and educational programs, as well as such organizational data as financial statements.