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Find an Organization by Health Topic Results: 1-9 of 9 Orgs
The National Human Genome Research Institute (NHGRI) and the Office of Rare Diseases (ORD), created the Genetic and Rare Diseases Information Center to help people find useful information, in English ... Details >
The mission of AsktheGeneticistSM is to answer questions about genetic concepts, and the etiology, treatment, research, testing, and predisposition to genetic disorders. By providing a port... Details >
Canavan Research Illinois (also known as Canavan Disease Research) is a nonprofit corporation and 501(c)(3) public charity based in Illinois, established in April 2000 to meet a critical need to suppo... Details >
The Dysautonomia Information Network (DINET) is a volunteer run 501(c)(3) nonprofit organization. Its mission is to raise awareness of autonomic nervous system dysfunction and to promote dysautonomia... Details >
The Hereditary Hemorrhagic Telangiectasia Foundation was formed in 1990 to aid and support persons with HHT; to provide patients, families and doctors with educational information; to foster an exchan... Details >
The National Hematologic Diseases Information Service (NHDIS) is a service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). The NIDDK is part of the National Institutes... Details >
Neurofibromatosis, Inc., is a nonprofit organization that provides individuals and families affected by neurofibromatosis (NF) and related disorders with information on the disorder, referrals to phys... Details >
The United Mitochondrial Disease Foundation is redefining hope for families affected by mitochondrial diseases--hereditary disorders, now considered as common as childhood cancers, that affect the cel... Details >
The Xeroderma Pigmentosum (XP) Family Support group exists to improve the quality of life of those persons with XP and other diagnosed UV light conditions. The XP Family Support Group raises funds to... Details >