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Michigan Birth Defects Tracking Program Program
Title: Michigan Birth Defects Registry
Organization: Michigan Department of Community Health (MDCH)
Project Period: March 2005–February 2010
Project Director: Janice Bach, MS, and Glenn Copeland, MBA
Grant Title: Population-Based Birth Defects Surveillance
Programs and the Utilization of Surveillance Data by Public Health
Programs
Project Summary
The Michigan Birth Defects Registry (MBDR) is a
statewide, population-based surveillance system that receives
demographic and medical information on children with birth defects.
Its purpose is to collect data, improve knowledge about birth
defects and prevention, identify service and referral needs, and
ensure that children with birth defects have access to available
resources. Through this project, the MDCH will broaden the methods
to identify cases and generate data for analysis and dissemination.
It will build partnerships to prevent birth defects and improve
access to early intervention and comprehensive, community-based,
family-centered care in a medical home.
Project Goals and ActivitiesSurveillance
- Continue to evaluate and improve MBDR data quality.
- Gather annual birth defects statistics for new birth
cohorts.
- Publish an annual report on birth defects trends, incidence,
and mortality.
- Broaden ways to identify birth defects cases beyond mandated
sources of cytogenetic laboratories and inpatient hospital
medical records departments.
Prevention
- Among health professionals and the public,
raise awareness of folic acid use and other known strategies for
preventing birth defects.
- Reduce the number of preventable birth
defects.
- Develop new ways to use MBDR data in
prevention programs.
Referrals
- Identify methods and materials to enhance
development of medical homes for children reported to the MBDR.
- Use MBDR data to evaluate regional systems
of care for children with special health care needs in Michigan.
- Link children with birth defects to public
health intervention programs, local Early On® system, and
genetic evaluation and counseling services.
- Conduct a field study at facilities taking
part in the pediatric genetics center reporting project.
- Recommend “best practices” for linking
children with birth defects to intervention services.
- Develop and distribute a birth defects
information “tool kit” for families and professionals.
Date:
January 03, 2008
Content source: National Center on Birth Defects and Developmental
Disabilities
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