In response to the Children’s Health Act of 2000, the Centers for Disease Control and Prevention (CDC) convened an expert panel of traumatic brain injury (TBI) researchers, advocates, registry administrators, and other professionals. The panel discussed the future of TBI registries and data systems, providing guidance for CDC to develop a national program. 

This report, Traumatic Brain Injury in the United States: The Future of Registries and Data Systems, summarizes the expert panel’s recommendations, which include: 

• Funding more states to collect, analyze, and report TBI surveillance data;



• Using existing national data sets to estimate the impact of TBI in the United States; and



• Enhancing systems to identify and contact people with TBI and to link them with needed services.

This report will help policy makers, researchers, advocates, public health professionals, and health department officials further the development of systems to collect data about people with TBI. These advancements will help them better inform those with such injuries about available services such as health care, employment training, and personal assistance.

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