National Niemann-Pick Disease Foundation, Inc. - NNPDF
Organization URL(s)
nnpdf@idcnet.comwww.nnpdf.org/
Other Contact Information
401 Madison Avenue, Suite B
P.O. Box 49
Fort Atkinson,
WI 53538-0049
877-287-3672 (Voice - Toll-free)
920-563-0930 (Voice)
920-563-0931 (FAX)
Description
The purpose of the National Niemann-Pick Disease Foundation, Inc., is to provide medical and educational information to assist in the correct diagnosis and referral of children with Niemann-Pick Disease. They also offer support to familes once the diagnosis is made.
Online Resources
- How is NPD Diagnosed?
http://www.nnpdf.org/npdisease_02.html - What Is Niemann-Pick Disease?
http://www.nnpdf.org/npdisease_01.html - What Treatment is Available for NPD?
http://www.nnpdf.org/npdisease_06.html
Print Resources
Newsletter published 3 times a year.