Noonan Syndrome Support Group, Inc. - NSSG

Organization URL(s)

info@noonansyndrome.org
noonansyndrome.org  

Other Contact Information

P.O. Box 145
Upperco, MD 21155

888-686-2224 (Voice - Toll-free)
410-374-5245 (Voice, )

Description

This international organization gives its members an opportunity to share experiences and exchange ideas on how to cope with Noonan Syndrome. The NSSG offers forums where physicians and other professionals can provide useful information on living with day-to-day challenges of the syndrome. By providing positive, accurate information to the media, medical community and schools, the NSSG helps fight misconceptions about Noonan Syndrome and lets others know help is available. Members can also get useful information on issues such as insurance, proper medical care, or options for having children.

Online Resources

• Noonan Syndrome Links - Noonan Syndrome Support Group, Inc.
  http://www.noonansyndrome.org/articlesinfo/morelinks.htm 
  
• Noonan Syndrome: Possible Anomalies
  http://www.noonansyndrome.org/articlesinfo/nsanomolies.html 
  
• Questions and Answers by People Affected by Noonan syndrome - Noonan Syndrome Support Group, Inc.
  http://www.noonansyndrome.org/Q&A.htm 
  

Print Resources

Noonan Syndrome News, quarterly newsletter; Members have access to the most recent articles published on Noonan Syndrome.

Related Topics

Advocacy Genetics Noonan Syndrome

Review Date

Thu Mar 23, 2006