Klippel-Trenaunay Syndrome Support Group
Organization URL(s)
j.vessey@att.netwww.k-t.org/
Other Contact Information
5404 Dundee Road
Edina,
MN 55436
952-925-2596 (Voice)
Description
The Klippel-Trenaunay Syndrome Support Group's mission is to provide support for K-T Syndrome patients and their families. Their objectives in accomplishing this mission are: to act as a support group for sharing experiences and information; to provide a clearinghouse for correspondence between members; and to maintain a list of current medical literature pertaining to K-T Syndrome and to make it available to members and professionals. There is no membership fee. The group is supported by donations.
Online Resources
- Description of Klippel-Trenaunay Syndrome
http://www.k-t.org/description.html
Print Resources
Newsletter available for members online; brochure also available.