Association for Glycogen Storage Disease - AGSD

Organization URL(s)

Other Contact Information

P.O. Box 896
Durant, IA 52747

563-785-6038 (Voice)
563-785-6038 (FAX)

Description

The Association for Glycogen Storage Disease (AGSD) is a nonprofit support group, established in 1979, for families and persons affected by glycogen storage disease (GSD). AGSD was organized to promote and protect the interests of all persons affected by GSD; to coordinate scientific, educational, and charitable activities related to GSD; to act as a clearinghouse on GSD-related matters; and to publish and distribute material to doctors and other interested persons. AGSD holds a yearly conference focusing on the latest research, care, and treatments available to affected persons.

Online Resources

What Is Glycogen Storage Disease?
http://www.agsdus.org/html/whatisglycogenstoragedisease.html

Print Resources

AGSD publishes lists of families and professionals who are members of AGSD, and a handbook about glycogen storage disease. The handbook is $10.00, and checks should be made out to: Association for Glycogen Storage Disease. Serial publications: The Ray (newsletter), quarterly--information on communications from patients with GSD, medical information, and fundraising.