Ehlers-Danlos National Foundation - EDNF
Organization URL(s)
staff@ednf.orgwww.ednf.org/
Other Contact Information
3200 Wilshire Blvd.
Suite 1610, South Tower
Los Angeles,
CA 90010
213-368-3800 (Voice)
213-427-0057 (FAX)
Description
The Ehlers-Danlos National Foundation's focus is to provide emotional support to patients and their families, to educate health professionals and researchers about Ehlers-Danlos syndrome (EDS), and to teach patients how to deal with their individual problems. EDNF distributes reprints of articles on EDS and related issues. Call for a newsletter and a telephone network. The Foundation sponsors Annual Learning Conferences.
Online Resources
- Ehlers-Danlos Information Page
http://www.ednf.org/index.php?option=com_deeppockets&task=catShow&id=2&Itemid=88888965/
Print Resources
The Ehlers-Danlos National Foundation distributes articles on EDS and related issues. Serial publication: Loose Connections (newsletter), quarterly.