http://www.savebabies.org/NBS/screeningproblems.php
Save Babies Through Screening Foundation
On one hand newborn screening has been a great success for public health. But on the other, especially in the eyes of families whose children are the ones that fell through the cracks, it is a massive failure. It is imperative that newborns are screened comprehensively for inherited disorders without delay and that the tests arrive at the laboratory as soon as possible. This page discusses problems in newborn screening, including batching, delays in transport, and inadequate education.