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The National Institute of Neurological Disorders and Stroke (NINDS) was originally established in 1950. The NINDS conducts and supports research and research training on the causes, prevention, diagno... Details >
The VHL Family Alliance, founded in 1993, is an international network of support groups for people with von-Hippel-Lindau. VHLFA brings together families, friends, physicians, and researchers, to imp... Details >