KS&A’s mission is to help individuals with one or more extra X and/or Y chromosomes and their families lead fuller and more productive lives

To a growing number of people, the letters “KS&A” stand for Knowledge Support & Action.  KS&A is the nation’s oldest and largest non-profit organization serving individuals and families affected by an uncommon number of X and/or Y chromosomes, including 47,XXY, Klinefelter syndrome, Trisomy X, 47,XYY, mosaicism and other associated conditions.

KS&A received its start on April 12, 1989, when nationally syndicated columnist Ann Landers published a letter written by the concerned mother of a then 8-year old 47,XXY son.

Within weeks, more than a thousand letters poured in from individuals all over the country who were affected by these conditions and other parents who expressed similar concerns with the lack of timely diagnosis, inaccurate information and poor support services for affected persons.  KS&A was formed shortly thereafter, and has operated continuously ever since.

What began as an effort by one concerned individual to locate information and support, has grown into an international support organization that today responds to calls and inquiries from persons who are just learning of the diagnosis, sponsors conferences and other events that are directed to the needs and interests of the individuals affected by these conditions, their families, and the clinicians, educators and researchers who serve them, and much more.... 

How can we assist you? 

We are as close as your telephone and offer support through a network of volunteers for each of the conditions we serve.  You may access this network by calling KS&A on our toll-free number from anywhere in the U.S. or Canada, (888) 999-9428, or from outside the U.S. at (949) 858-8384. 

Our website is organized into seven sections, which are listed horizontally across the top of each page including this one.  By rolling your mouse over each section title, you can see the various topics that it includes.  Click on any of these topics or any of the highlighted words or phrases throughout the site to go directly to that service or to get more information about the subject.

Alternatively, you can click on the button in the right-hand column of this page corresponding to the specific condition that affects you, a member of your family or someone you know, in order to learn more about the condition and what KS&A offers expressly for that chromosomal variation.  Or, by clicking on the word “Search” in the upper right hand corner of each page, you open a powerful tool to locate specific information within this site by keyword.

Bookmark this page so that you can return here to read the latest announcements such as upcoming conferences and special offers, which are updated often. 

Please be patient as we are still working on the site

Although this site contains well over 200 pages of high quality content, it remains a work-in-process.  On pages where there is still considerable work yet to be done, you may see a “Please be patient” message describing the new functionality or content we foresee adding as time and financial resources permit.  We’d love to have your assistance in getting this work accomplished sooner, so please let us know if you’d care to Volunteer Your Time or to Make a Contribution that will assist us to complete these sections even more quickly so that others will benefit.

2008 - FAMILIES’ CONFERENCE and ADULT RETREAT

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