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Coping with Advanced Cancer
    Posted: 09/30/2005



About This Booklet






Making Choices About Care






Talking With Your Health Care Team






Getting Help for Your Symptoms






Coping With Your Feelings






Advance Planning






Talking With the Special People






Looking for Meaning






Closing Thoughts






Resources






Personal Affairs Worksheet






For more information



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National Cancer Institute
Provides current information on cancer prevention, screening, diagnosis, treatment, genetics, and supportive care. Lists clinical trials and specific cancer topics in NCI's Physician Data Query (PDQ®) database.

Visit:www.cancer.gov

Cancer Information Service
Answers questions about cancer, clinical trials, and cancer-related services and helps users find information on the NCI Web site. Provides NCI printed materials.

Toll-free:1-800-4-CANCER (1-800-422-6237)
TTY:1-800-332-8615
Visit:www.cancer.gov/cis
Chat online:Click on "LiveHelp."

Administration on Aging
Provides information, assistance, individual counseling, organization of support groups, caregiver training, respite care, and supplemental services.

Phone:1-202-619-0724
TTY:1-800-877-8339
Visit:www.aoa.gov

Centers for Medicare and Medicaid Services
Provides information for consumers about patient rights, prescription drugs, and health insurance issues, including Medicare and Medicaid.

Toll-free:1-800-MEDICARE (1-800-633-4227)
Visit: www.medicare.gov (for Medicare information)
or www.cms.hhs.gov (other information)

Equal Employment Opportunity Commission
Provides fact sheets about job discrimination, protections under the Americans With Disabilities Act, and employer responsibilities. Coordinates investigations of employment discrimination.

Toll-free:1-800-669-4000
TTY:1-800-669-6820
Visit:www.eeoc.gov

U.S. Department of Labor
Office of Disability Employment Policy

Provides fact sheets on a variety of disability issues, including discrimination, workplace accommodation, and legal rights.

Toll-free:1-866-633-7365
TTY:1-877-889-5627
Visit:www.dol.gov/odep

Private/NonProfit Organizations

Aging With Dignity
Provides information and materials regarding advance directives. You can order the document Five Wishes, which states your end of life decisions for your health care team, and friends and family members.

Toll-free:1-888-5WISHES (1-888-594-7437)
Visit:www.agingwithdignity.org

American Cancer Society
National Cancer Information Center

Available to answer questions 24 hours a day, 7 days a week.

Toll-free:1-800-ACS-2345 (1-800-227-2345)
Visit:www.cancer.org

CancerCare
Offers free support, information, financial assistance, and practical help to people with cancer and their loved ones.

Toll-free:1-800-813-HOPE (1-800-813-4673)
Visit:www.cancercare.org

Hospice Foundation of America
Provides programs and materials on hospice care, caregiving, grief, and end of life. They also provide a hospice locator service, and links to other organizations and resources.

Toll-free:1-800-854-3402
Visit:www.hospicefoundation.org

Kids Konnected
Offers education and support for children who have a parent with cancer or who have lost a parent to cancer.

Toll-free:1-800-899-2866
Visit:www.kidskonnected.org

National Coalition for Cancer Survivorship
Provides information on cancer support, employment, financial and legal issues, advocacy, and related issues.

Toll-free:1-877-NCCS YES (1-877-622-7937)
Visit:www.canceradvocacy.org

National Hospice and Palliative Care Organization
Provides information on hospice care, local hospice programs, state specific advance directives, and locating a local health care provider. They also provide education and materials on palliative and end of life issues, as well as links to other organizations and resources.

Toll-free:1-800-658-8898
Visit:www.nhpco.org
Caring Connections
Toll-free:1-800-658-8898
Visit:www.caringinfo.org

NeedyMeds--Indigent Patient Programs
Lists medicine assistance programs available from drug companies. NOTE: Usually patients cannot apply directly to these programs. Ask your doctor, nurse, or social worker to contact them.

Visit:www.needymeds.com

Patient Advocate Foundation
Offers education, legal counseling, and referrals concerning managed care, insurance, financial issues, job discrimination, and debt crisis matters.

Toll-free:1-800-532-5274
Visit:www.patientadvocate.org

The Wellness Community
Provides free psychological and emotional support to cancer patients and their families.

Toll-free:1-888-793-WELL (1-888-793-9355)
Visit:www.wellnesscommunity.org
* For a complete list of resources, see the fact sheet, "National Organizations That Offer Services to People With Cancer and Their Families" at www.cancer.gov, search terms "national organizations." Or call 1-800-4-CANCER (1-800-422-6237) to ask for it.

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