[Federal Register: September 3, 2008 (Volume 73, Number 171)]
[Notices]               
[Page 51492-51493]
From the Federal Register Online via GPO Access [wais.access.gpo.gov]
[DOCID:fr03se08-83]                         

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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration

 
Advisory Committee on Heritable Disorders in Newborns and 
Children; Notice of Meeting

    In accordance with section 10(a)(2) of the Federal Advisory 
Committee Act (Public Law 92-463), notice is hereby given of the 
following meeting:
    Name: Advisory Committee on Heritable Disorders in Newborns and 
Children (ACHDNC).
    Dates and Times: October 1, 2008, 1 p.m. to 5 p.m.; October 2, 
2008, 8 a.m. to 3 p.m.
    Place: Capital Hilton, 1001 16th Street, NW., Washington, DC 20036.
    Status: The meeting will be open to the public with attendance 
limited to space availability. Participants are asked to register for 
the meeting by going to the registration Web site at http://
events.SignUp4.com/ACHDNC1008. Individuals who need special assistance, 
such as sign language interpretation or other reasonable 
accommodations, should indicate their

[[Page 51493]]

needs on the registration Web site. The registration deadline is 
Tuesday, September 30, 2008. If there are technical problems gaining 
access to the Web site, please contact Tamar R. Shealy, Meetings 
Manager, Conference and Meetings Management, Altarum Institute, 
telephone: (202) 828-5100.
    Purpose: The ACHDNC was established to advise and guide the 
Secretary regarding the most appropriate application of universal 
newborn screening tests, technologies, policies, guidelines and 
programs for effectively reducing morbidity and mortality in newborns 
and children having or at risk for heritable disorders. The ACHDNC also 
provides advice and recommendations concerning the grants and projects 
authorized under the Heritable Disorders Program.
    Agenda: The meeting will include presentations and continued 
discussions on the nomination/evaluation process for newborn screening 
candidate conditions. There will be presentations on emergency 
preparedness and contingency planning for newborn screening, as well as 
presentations on the continued work and reports of the ACHDNC's 
subcommittees on laboratory standards and procedures, follow-up and 
treatment, and education and training.
    Proposed agenda items are subject to change as priorities dictate. 
The Agenda, Committee Roster and Charter, presentations, and meeting 
materials can be located at the home page of the Web site at http://
events.SignUp4.com/ACHDNC1008.
    Public Comments: Members of the public can present oral comments 
during the public comment period of the meeting. Those individuals are 
required to register online by Tuesday, September 30, 2008, at http://
events.SignUp4.com/ACHDNC1008. Requests will contain the name, address, 
telephone number, and any professional or business affiliation of the 
person desiring to make an oral presentation. Groups having similar 
interests are requested to combine their comments and present them 
through a single representative. The list of public comment 
participants will be posted on the Web site. Parties wishing to submit 
written comments should ensure that the comments are postmarked or e-
mailed no later than Friday, September 26, 2008, for consideration. 
Comments should be submitted to Tamar R. Shealy, Meetings Manager, 
Conference and Meetings Management, Altarum Institute, 1200 18th 
Street, NW., Suite 700, Washington, DC 20036, telephone: (202) 828-
5100; fax: (202) 785-3083, or e-mail: Tamar.Shealy@altarum.org.
    Contact Person: Anyone interested in obtaining other relevant 
information should write or contact Jill F. Shuger, M.S., Maternal and 
Child Health Bureau, Health Resources and Services Administration, Room 
18A-19, Parklawn Building, 5600 Fishers Lane, Rockville, Maryland 
20857, telephone (301) 443-1080, jshuger@hrsa.gov. Information on the 
Advisory Committee is available at http://mchb.hrsa.gov/
heritabledisorderscommittee.

    Dated: August 27, 2008.
Alexandra Huttinger,
Director, Division of Policy Review and Coordination.
[FR Doc. E8-20441 Filed 9-2-08; 8:45 am]

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