National Hemophilia Foundation - NHF
Organization URL(s)
handi@hemophilia.orgwww.hemophilia.org
Other Contact Information
116 West 32nd Street
11th Floor
New York,
NY 10001
800-42-HANDI (Voice - Toll-free)
212-328-3700 (Voice)
212-328-3777 (FAX)
Description
The National Hemophilia Foundation (NHF), founded 1948, serves hemophiliacs and their families through its local chapters. Patient services include support of comprehensive care centers, scholarships, patient education, blood drives, emergency financial assistance, and referrals. The NHF also provides research stipends, promotes public policies benefitting hemophiliacs, and sponsors public and professional education programs. NHF has promoted the concept of comprehensive hemophilia treatment programs and has obtained Federal funding for 20 such programs.
Online Resources
- Factor VII Deficiency
http://www.hemophilia.org/bdi/bdi_types7.htm - Factor XI Deficiency (Hemophilia C)
http://www.hemophilia.org/bdi/bdi_types9.htm - Von Willebrand Disease
http://www.hemophilia.org/bdi/bdi_types3.htm
Print Resources
NHF publishes pamphlets and booklets on the treatment of hemophilia, a film and slides on home treatment, and a newsletter. Serial publications: Newsnotes (newsletter), quarterly--articles of interest to patients, their families, the public, and the hemophilia medical profession; Psychosocial News (newsletter), biannual; Nursing Network News (newsletter), biannual.