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Support Groups
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Chronic Fatigue Syndrome (CFS) patients may find it therapeutic to meet with other people who have this illness, and often this can be accomplished by joining a local CFS support group. Review the following information carefully to locate a resource that is reliable, convenient, and comfortable to you.
Chronic Fatigue Syndrome (CFS) patients may find it therapeutic to meet with other people who have this illness, and often this can be accomplished by joining a local CFS support group. Review the following information carefully to locate a resource that is reliable, convenient, and comfortable to you.
Support groups are not appropriate for everyone, and some CFS patients may find that a support group actually adds to their stress rather than relieving it. Most support groups are free, collect voluntary donations, or charge modest membership dues to cover basic expenses (e.g. refreshments at meetings or photocopying costs).
A useful support group should include:
- Both newcomers and patients who have had CFS for longer periods of time to provide a balance of perspectives for the group.
- People with whom the CFS patient feels comfortable.
- Leaders who empathize, gently draw out shy members, and keep others from dominating, and who distill discussion into useful information.
- A history indicating the group is stable and meeting the needs of its members.
Some support groups may put their own interests before those of the individual patient. Groups that engage in any of the following activities should be avoided:
- Promise sure cures and quick solutions.
- Conduct meetings that are mainly "gripe" sessions.
- Urge patients to stop prescribed treatment and recommend a single solution to their problem.
- Insist that patients reveal private or sensitive information.
- Demand allegiance to a cult-like, charismatic leader.
- Charge high fees.
- Require patients to purchase products.
Page last modified on March 25, 2008
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