Sturge-Weber Foundation - SWF

Organization URL(s)

swf@sturge-weber.com
www.sturge-weber.com/

Other Contact Information

P.O. Box 418
Mt. Freedom, NJ 07970

800-627-5482 (Voice - Toll-free)
973-895-4445 (Voice)
973-895-4846 (FAX)

Description

The Sturge-Weber Foundation (SWF) is a non-profit foundation serving people with Sturge-Weber syndrome (also known as encephalotrigeminal angiomatosis), Klippel Trenaunay (KT) and Port Wine Stains (PWS), their families, and the medical and professional community. The Foundation acts as a clearinghouse for information and to facilitate fund raising for research into SWS, KT and PWS. The Foundation provides telephone counselling in addition to an e-mail support group on the Internet

Online Resources

What Is Sturge-Weber Syndrome?
http://www.sturge-weber.org/NewlyDiagnosed.aspx

Print Resources

Articles, pamphlets and booklets on Sturge-Weber syndrome. SWF: The Sturge-Weber Foundation Newsletter--periodic, articles on treatment, medical updates, and information relating to Sturge-Weber syndrome.