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von Hippel-Lindau Syndrome
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National Institute of Neurological Disorders and Stroke, National Institutes of Health
The National Institute of Neurological Disorders and Stroke (NINDS) was originally established in 1950. The NINDS conducts and supports research and research training on the causes, prevention, diagno... Details >
VHL (Von Hippel-Lindau) Family Alliance 
The VHL Family Alliance, founded in 1993, is an international network of support groups for people with von-Hippel-Lindau. VHLFA brings together families, friends, physicians, and researchers, to imp... Details >