Facts About Rare Muscular Dystrophies: Congenital, Distal, Emery-Dreifuss and Oculopharyngeal Muscular Dystrophies
Internet URL
http://www.mdausa.org/publications/fa-rareMD.html 
This document also available in Spanish
Sponsoring Agency
Muscular Dystrophy Association
Description
The rarity of Emery-Dreifuss, congenital, distal and oculopharyngeal muscular dystrophies makes it very important that you get all the information you can about your disorder.