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Disease Registry
Agency for Toxic Substances and Disease Registry Information Center, Centers for Disease Control and Prevention
The role of this agency is to implement the laws that protect the public from hazardous wastes and environmental spills of hazardous substances. ATSDR is charged under the Superfund Act of 1980 to ass... Details >
Division of Cancer Prevention and Control, Centers for Disease Control and Prevention
The Division of Cancer Prevention and Control (DCPC) serves as a leader for nationwide cancer prevention and control. Through its partnership with state health agencies and other key groups, DCPC is ... Details >
Asian American Donor Program 
Asian American Donor Program (AADP) is a National Marrow Donor Program (NMDP) recruitment agency which provides education regarding the issue of unrelated marrow donation, and opportunities for the ge... Details >
Batten Disease Support and Research Association
The Batten Disease Support and Research Association (BDSRA) was formed by a group of families in the U.S. and Canada with a mission to offer emotional support, provide information and referrals, and t... Details >
Bone Marrow Foundation
The Bone Marrow Foundation, through its Patient Aid Program, provides financial aid, education and support services to children and adults who will undergo a bone marrow transplant. Patients and famil... Details >
Foundation for Ichthyosis and Related Skin Types, Inc.
The Foundation for Ichthyosis and Related Skin Types, Inc. is a nonprofit organization incorporated in California in 1981. The Foundation is supported by public contributions and membership fees. Th... Details >
Malignant Hyperthermia Association of the United States
The Malignant Hyperthermia Association of the United States (MHAUS) is a non-profit educational organization whose purpose is to increase education and awareness of Malignant Hyperthermia and therefor... Details >
National Marrow Donor Program®
The National Marrow Donor Program (NMDP) is committed to its mission to extend and improve life through innovative stem cell therapies. The NMDP has facilitated more than 14,000 transplants throughou... Details >
Progeria Research Foundation, Inc.
PRF’s mission is to discover the cure and effective treatment for Hutchinson-Gilford Progeria Syndrome (Progeria) and its aging related disorders. Progeria is a fatal, rapid aging syndrome that afflic... Details >
PXE International, Inc.
PXE International initiates, funds and conducts research on pseudoxanthoma elasticum. It also provides full support for patients and their clinicians.... Details >