http://www.niams.nih.gov/Health_Info/Epidermolysis_Bullosa/default.asp
National Institute of Arthritis and Musculoskeletal and Skin Diseases, National Institutes of Health
This booklet is for people who have epidermolysis bullosa (ep-ee-der-MOL-eh-sis bull-O-sa, often called "EB"), parents and caregivers of children with EB, and others interested in learning more about the disease. The booklet describes the disease and its symptoms and contains information about diagnosis and treatment, as well as research efforts conducted on EB. The booklet discusses issues such as skin care and quality of life for people with EB.