http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Epidermolysis%20Bullosa
National Organization for Rare Disorders, Inc.
Information designed to assist newly diagnosed patients with Epidermolysis Bullosa (EB), a group of rare, hereditary skin diseases. The page contains a brief description of EB, resources for patients, and information on ordering materials and publications.