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Craniofacial Deformities

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Apert Syndrome  External Link

This site provides a list of questions and answers about Apert Syndrome, including other resources of information.... Details >

FACES: The National Craniofacial Association  External Link

Cleft Lip and Cleft Palate  External Link

Also available in: Spanish   External Link

This consumer information fact sheet discusses the birth defect oral-facial clefts and includes information about both forms of the disorder -- cleft lip/palate and isolated cleft palate.... Details >

March of Dimes Birth Defects Foundation  External Link

Cleft Lip and Palate  External Link

This site provides a list of questions and answers about Cleft Lip and Palete, including other resources of information.... Details >

FACES: The National Craniofacial Association  External Link

Craniofacial Disorder Descriptions  External Link

A craniofacial disorder refers to an abnormality of the face and/or the head. Craniofacial differences can result from abnormal growth patterns of the face or skull, which involves soft tissue and bon... Details >

Children's Craniofacial Association  External Link

Craniofacial Disorders - List of Disorders  External Link

This site presents a list of craniofacial disorders with information and support networks on each of them.... Details >

FACES: The National Craniofacial Association  External Link

Craniofacial Medical Centers  External Link

This site provides a list of craniofacial reconstructive surgeons teams across the country.... Details >

FACES: The National Craniofacial Association  External Link

Frequently Asked Questions of Cranio (Craniofacial Deformities)  External Link

This document answers questions about Craniosynostosis, a congenital anomaly characterized by the premature closure of one or more cranial sutures (the fibrous joints between the bones of the skull). ... Details >

Craniosynostosis And Positional Plagiocephaly Support, Inc.  External Link

Hemangioma Newsline: The Newsletter of NOVA  External Link

This site contains newsletters with basic information on the diagnosis and treatment of hemangioma and vascular malformation. It also features an area on new research and publications that comes from... Details >

National Organization for Vascular Anomalies  External Link

Hemangioma: The Most Common Benign Tumor of Infancy & Children  External Link

This site provides all the basic information about the disease; including a link to common questions.... Details >

National Organization for Vascular Anomalies  External Link

Hemangiomas  External Link

A hemangioma is a form of birthmark that usually appears in the head and neck area within one to four weeks after birth. The cause of hemangiomas has not been determined, and accurate diagnosis and ea... Details >

Vascular Birthmarks Foundation  External Link

Positional Plagiocephaly Information: The Casting Process (Craniofacial Deformities)  External Link

This document discusses casting process, a procedure that applies cast material to a child's head in order to obtain a mold. The document provides answers to some commonly asked questions about castin... Details >

Craniosynostosis And Positional Plagiocephaly Support, Inc.  External Link

Positional Plagiocephaly Prevention (Craniofacial Deformities)  External Link

Positional Plagiocephaly is the most common positional head deformity, a condition that is caused by repeated external pressure applied to the same area of the skull. While it is true there are no ste... Details >

Craniosynostosis And Positional Plagiocephaly Support, Inc.  External Link

Practical Tips for New Parents: Craniofacial Deformities  External Link

The most immediate health issues for a child born with a craniofacial condition can be divided into five categories: breathing, feeding, nutrition, sleeping, and social adaptation. This guide provides... Details >

Foundation for Faces of Children  External Link

Resources for Facial Surgery and Recovery: Facial Difference  External Link

This page contains support and information resources for pain control, eating, prosthetics, and legal resources.... Details >

Let's Face It  External Link

Resources for Specific Conditions: Facial Difference  External Link

This page contains organizations, information, and support resources grouped by conditions (i.e., cleft palate, crouzon syndrome, moebius syndrome, cancer, etc.).... Details >

Let's Face It  External Link

Resources for Various Conditions: Facial Difference  External Link

This page contains information and support resources for the many aspects of facial disfigurement. There is also a special section specifically for siblings and fathers.... Details >

Let's Face It  External Link

SMILES  External Link

A web site designed to meet the needs of parents of children born with cleft lip, cleft palate and craniofacial deformities.... Details >

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Vascular Malformations & Related Syndromes  External Link

This page provides basic information including pictures of vascular malformations and other related syndromes; some of which are often first diagnosed as hemangioma because of their similarity.... Details >

National Organization for Vascular Anomalies  External Link

What is Craniosynotosis?  External Link

This document discusses craniosynotosis, the term for a group of conditions in which a baby's head develops abnormally because the seams between the bones close prematurely. The document answers quest... Details >

Foundation for Faces of Children  External Link

What's a Birthmark?   External Link

Also available in: Spanish   External Link

A baby can develop birthmarks either before he or she is born or soon after birth. One of the most common types of birthmarks is called a hemangioma. These birthmarks happen when many new blood vessel... Details >

Nemours Foundation  External Link