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Find an Organization by Health Topic Results: 1-33 of 33 Orgs
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The Disability and Health Team is part of the new National Center for on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention (CDC) located in Atlanta, Georgi... Details >
The HRSA Information Center is a nationwide point of entry for publications, resources and referrals on health care services for low-income, uninsured individuals and those with special health care ne... Details >
The National Center for Chronic Disease Prevention and Health Promotion (NCCDPHP) consists of the Division of Adolescent and School Health, the Division of Adult and Community Health, the Division of ... Details >
The mission of the National Center for Environmental Health (NCEH) is to provide national leadership, through science and service, to promote health and quality of life by preventing and controlling d... Details >
The Office on Disability and Health is a part of the Division of Human Development and Disability within NCBDD and works to prevent secondary conditions and promote health and wellness and quality of ... Details >
The National Institute of Child Health and Human Development (NICHD) conducts and supports basic and clinical research in maternal and child health and the population sciences. It will respond to ind... Details >
The mission of the NIEHS is to reduce the burden of human illness and disability by understanding how the environment influences the development and progression of human disease. To have the greatest ... Details >
The goal of this nonprofit organization is to further support, education, and research efforts for individuals and their families affected by alpha1-antitrypsin deficiency (A1AD).... Details >
The American Cleft Palate-Craniofacial Association (ACPA) is an international, non-profit medical society of health care professionals from 30 disciplines and 40 countries who treat and/or research bi... Details >
The Angelman Foundation’s (ASF) mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, and support for individuals with Angelman Syndrome, ... Details >
Angioma Alliance is a non-profit international patient advocacy organization created by people affected by cavernous angioma (cerebral cavernous malformation). The organization works to inform and sup... Details >
Beckwith-Wiedemann Syndrome (BWS) is a congenital growth related disorder. There are roughly thirty characteristics which can be associated with BWS. Most often seen are enlarged tongue, umbilical h... Details >
Birth Defect Research for Children provides information and support to families of children with birth defects. BDRC sponsors research on birth defects caused by exposures to environmental agents--dr... Details >
CHERUBS is a volunteer organization that provides support, information and resources related to Congenital Diaphragmatic Hernia (CDH). Membership in the organization is open to adult survivors and par... Details >
Children's PKU Network is a nonprofit agency founded in 1991 by the parents of a child diagnosed with PKU (Phenylketonuria). The agency offers support through various programs to assist families with... Details >
Established in 1977 as a not-for-profit voluntary organization, the International Joseph Diseases Foundation is dedicated to assisting individuals who are affected by or may be at risk for Joseph Dise... Details >
The Klippel-Trenaunay Syndrome Support Group's mission is to provide support for K-T Syndrome patients and their families. Their objectives in accomplishing this mission are: to act as a support grou... Details >
KS&A’s mission is to help individuals with one or more extra X and/or Y chromosomes and their families lead fuller and more productive lives.... Details >
The March of Dimes Birth Defects Foundation was established in 1938. Its mission is to improve the health of babies by preventing birth defects and infant mortality. The mission is carried out throu... Details >
The Myelin Project is a non-profit organization, the goal of which is to accelerate research on the remyelination of the central nervous system. Successful research in this area will help those suffer... Details >
Established in 1984, the Center provides diagnosis and treatment to children born with Birth Defects, Genetic Diseases and Mental Retardation. The Center consists of physicians and consultants in pedi... Details >
The National Council on Alcoholism and Drug Dependence, Inc.(NCADD), founded in 1944, is a national, nonprofit organization combating alcoholism, other drug addictions, and related problems. NCADD's ... Details >
The National Foundation for Ectodermal Dysplasias, (NFED), was organized in order that accurate information on ectodermal dysplasias (ED) would be available to patients and their families dealing with... Details >
Hemangioma Newsline became The National Organization of Vascular Anomalies in 2004 and is a non-profit organization established under IRS code 501c3a. The organization is dedicated to aiding individua... Details >
The National Society of Genetic Counselors (NSGC), formed in 1978, is a leading voice, authority and advocate for the genetic counseling profession. NSGC promotes the genetic counseling profession as... Details >
This non-profit organization is dedicated to the identification, treatment and cure of urea cycle disorders. The National Urea Cycle Disorders Foundation (NUCDF) provides information, education and su... Details >
The Nevus Network, founded in 1983, is a support group to provide help and understanding to families whose lives have been touched by large birthmarks, called giant congenital nevi and a related condi... Details >
Shriners Hospitals is a network of 22 pediatric speciality hospitals that provide free orthopaedic and burn care to children under the age of eighteen. There are 18 orthopaedic Shriners Hospitals, thr... Details >
The Sotos Syndrome Support Association (SSSA) was organized in 1988 to provide a support network for families and individuals affected by the syndrome. Sotos syndrome, also known as cerebral gigantis... Details >
Support Organization for Trisomy 18, 13 and Related Disorders (SOFT) is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and ... Details >
This is an international charitable organization that provides support and informational resources for individuals affected by hemangiomas, port wine stains and other vascular birthmarks and tumors, a... Details >
This voluntary organization provides information and support for families of children with cleft lip and palate birth defects. The organization maintains a cleft lip and palate resource web site on th... Details >
The Williams Syndrome Association, Inc., is a national, non-profit organization whose purpose is to provide support and the latest medical and educational information to individuals with Williams Synd... Details >