June 15 – 16 2009, The HHT Capitol Hill Day will be held on June 15 and 16th in our nation’s capitol. You are personally invited to join with the HHT Board of Directors, our HHT Center of Excellence Directors, and our Foundation Office Staff for this important event. Please click here to learn more.

Kerry Chu, the daughter of Dennis and Maureen Routledge, is running in the Country Music Marathon in Nashville in April 2009 for HHT. Dennis is a very active HHT Board of Director Alumni. Click here to learn more about Kerry’s story and how you can support her and HHT.

April 19th, 2009: 7th Annual Bass Open A charitable golf tournament organized by past Board member Lisa Bass with the proceeds to benefit HHT Research. Wakefield Valley Golf Club, Westminster, MD. Click here to register, sponsor or donate to this event.

May 17, 2009 – Bay to Breakers Race for HHT. The Brown family, valued members of the HHT Foundation, are organizing and running in the Bay to Breakers Race in San Francisco for HHT on May 17th. Click here to learn more about the event and how you can support the HHT Foundation in this event.

April 19th 2009: Please join the Philadelphia HHT Regional Networking Alliance for their first meeting on Sunday, April 19th at University of Pennsylvania. For more information Click Here

Research project from St. John Hospital in cooperation with the HHT Foundation!
February 18th 2009:Click Here to Learn More!

SAVE THE DATE: 8th HHT Scientific Meeting in Santander, Spain on May 27-31, 2009. Click on the link www.hht2009.com to get more information.

Order your HHT Tribute Greeting Cards to recognize loved ones in a very meaningful way during the holidays or special personal occasions while supporting the HHT Foundation.

Click here to read more about the HHT/CDC Conference, “HHT Health Initiative for the 21st Century,” held on March 5-6, 2008 in Atlanta.

Thalidomide and gastrointestinal bleeding: A research study is recruiting HHT patients who have gastrointestinal bleeding and require blood transfusions. This study will determine whether thalidomide reduces the need for blood transfusions . Contacts: Atul Kumar, MD 631-261-440 ext. 5765 or Jim Gossage, MD 706-721-6791. Please click here for the link to the study.

HHT partners with NDRI for tissue donation.

Learn how YOU can support current events to benefit HHT

HHT Patients Needed for Mayo Clinic Study

HHT Foundation International

We are the only non-profit organization dedicated to finding a cure, the best available treatment, and education to the medical community and to those with Osler-Weber-Rendu Syndrome. The Foundation currently has over 2000 paid members and has been contacted by over 7000 individuals since our founding in 1991.

OUR MISSION is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

To achieve this mission, the HHT Foundation will :

1. Fund research to find better treatments and a cure.
2. Educate families and physicians about HHT so that awareness of crucial diagnosis and available treatments prevents needless disability and death.
3. Provide linkages among people affected by HHT.
4. Collaborate with multidisciplinary HHT Treatment Centers worldwide while advocating for patient access to these Centers.
5. Advocate for and support those with HHT while increasing public, private, and governmental awareness of the disorder.
6. Engage the scientific and medical community so that talented individuals dedicate efforts toward advances in HHT screening, diagnosis, treatment, and research.

HHT Foundation International, Inc. P.O. Box 329 Monkton, MD 21111 USA 1-800-448-6389 410-357-9932 (Outside U.S.) FAX: 410-357-0655 This e-mail address is being protected from spam bots, you need JavaScript enabled to view it