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Financial Assistance InformationThe National Institutes of Health (NIH) is composed of U.S. government biomedical research institutions and is not authorized to provide routine medical assistance or treatment funds. These are some resources, however, that may help in finding information on financial aid for medical treatment. Visit these Web sites frequently for new information as it becomes available. Talk to your state or county health department or social workers at your local hospital for more information on available resources. This document is divided into five sections, as follows:
Assistance with Paying for Medical Care and ProceduresDepartment of Health and Human Services (DHHS) [hhs.gov] Contact DHHS directly: The U.S. Department of Health and Human Services Government Benefits [govbenefits.gov] Health Resources and Services Administration [mchb.hrsa.gov] Contact MCHB Directly: Maternal and Child Health Bureau (MCHB) Families With Children With Special Health Care Needs [mchb.hrsa.gov]
Financial Aid for Medical TreatmentsInformation on financial aid for medical treatments can also be obtained from the following patient advocacy organizations:
Family Voices [familyvoices.org]
Resources state by state [familyvoices.org] Your child may be eligible to receive social security. To find out if your child qualifies a publication from the Social Security Administration(SSI) [ssa.gov] outlines who may qualify, and how to get this money. It also provides links to the Children's Health Insurance Program (CHIP) in each state.
Assistance with Paying for MedicationsPharmaceutical Research and Manufacturers of America [phrma.org] Pharmaceutical Research and Manufacturers of America National Organization for Rare Disorders [rarediseases.org] Contact NORD directly:
Assistance with Insurance IssuesGeorgetown University Health Policy Institute [healthinsuranceinfo.net] TheDesk.info [thedesk.info] Centers for Medicare and Medicaid Services [cms.hhs.gov] Medicaid EligibilityTo find out if you are eligible to receive Medicaid coverage, contact your state Medicaid office. Contact information for Medicaid offices in each state can be accessed on the State Resources Web page [pmic.carescout-elderanswers.com] from Physicians' Mutual Insurance Company. The Information Center is providing this link for informational purposes only, not as an endorsement of this Insurance Company. KaiserNetwork.org [kaisernetwork.org] Medicaid WaiversMedicaid waivers are state-run programs that use federal and state funds to pay for health care for people with certain health conditions. In some states, families can apply for a medicaid waiver that waives the family income and looks only at the disabled person's income. This allows people who would otherwise be ineligible for Medicaid to receive medical care. Most states have some type of Medicaid waiver program. To find out more about Medicaid waiver programs in general, as well as specific state programs, visit: Family Voices [familyvoices.org] Medicare [medicare.gov]
Participation in Clinical TrialsThe National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. To find clinical trials, click on the link below and type the disease name as your search term. After you click on a study, review its "eligibility" criteria to determine its appropriateness. Use the study's contact information to learn more. Check this site often for regular updates. If there is a clinical trial for which you might be eligible and if you are interested in enrolling, you can find helpful general information on clinical trials on the Web site of the Office of Rare Diseases (ORD) [rarediseases.info.nih.gov], part of the National Institutes of Health of on the National Human Genome Research Institute Web site at: Current NHGRI Clinical Studies. Resources on many charitable or special-fare flights to research and treatment sites and low-cost hospitality accommodations for outpatients and family members, as well as ambulance services, are also listed on the ORD Web pages [rarediseases.info.nih.gov]. Clinical Center [cc.nih.gov]
Important DisclaimerThe materials provided are for informational or educational purposes only and are not intended as a substitute for professional medical care, advice, diagnosis, or treatment. This material does not represent an endorsement of any specific tests and products by the National Human Genome Research Institute or the Office of Rare Diseases at the National Institutes of Health. We cannot guarantee the accuracy, completeness, timeliness, or usefulness of the opinions, advice, services, or other information provided. Moreover, we strongly recommend that you seek the advice of your health care provider with any questions regarding your medical care.
Last Updated: June 17, 2008 |
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