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Find an Organization by Health Topic Results: 1-18 of 18 Orgs
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The National Institute of Neurological Disorders and Stroke (NINDS) was originally established in 1950. The NINDS conducts and supports research and research training on the causes, prevention, diagno... Details >
The FDA's Office of Orphan Products Development (OOPD) is dedicated to promoting the development of products that demonstrate promise for the diagnosis and/or treatment of rare diseases or conditions.... Details >
The American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), founded in 1948, is a multidisciplinary scientific society devoted to the study of cerebral palsy and related neurological ... Details >
The mission of AsktheGeneticistSM is to answer questions about genetic concepts, and the etiology, treatment, research, testing, and predisposition to genetic disorders. By providing a port... Details >
The Batten Disease Support and Research Association (BDSRA) was formed by a group of families in the U.S. and Canada with a mission to offer emotional support, provide information and referrals, and t... Details >
This national non-profit organization was founded in 1988 by a group of dedicated parents, physicians and friends to improve the treatment, quality of life and the long-term outlook for children with ... Details >
This center is investigating complementary and alternative treatments for neurodegenerative diseases (e.g., Parkinson's, Alzheimer's, and Huntington's Disease, MS, stroke). Current fully developed pro... Details >
The Huntington's Disease Society of America (HDSA) is an organization of over 30 chapters and affiliates nationwide. The Society provides written and audiovisual materials pertaining to all aspects o... Details >
The Joubert Syndrome Foundation & Related Cerebellar Disorders was founded to share knowledge, experiences and emotional support with those affected by Joubert Syndrome. Joubert Syndrome is the agenes... Details >
The Les Turner Amyotrophic Lateral Sclerosis (ALS) Foundation is a nonprofit organization that offers support to patients and families living with the day-to-day difficulties associated with ALS--also... Details >
The Multiple Sclerosis Association of America exists to ease the day-to-day challenges of individuals with Multiple Sclerosis and their caregivers.... Details >
The Multiple Sclerosis Foundation, Inc. (MSF) provides information, referral and support services to professionals, those diagnosed with multiple sclerosis, family members and friends. The mission of... Details >
The purpose of the National Niemann-Pick Disease Foundation, Inc., is to provide medical and educational information to assist in the correct diagnosis and referral of children with Niemann-Pick Disea... Details >
The National Tourette Syndrome Association (TSA) was established to support research into Tourette Syndrome and to provide educational materials relating to the disorder. It helps patients who have b... Details >
The Parkinson's Disease Foundation (PDF), founded in 1957, is a leading national presence in Parkinson’s disease research, patient education and public advocacy. PDF is working for the nearly one mi... Details >
The mission of Post-Polio Health International, including International Ventilator Users Network is to enhance the lives and independence of polio survivors and home mechanical ventilator users by pro... Details >
The Restless Legs Syndrome Foundation, is dedicated to improving the lives of the men,women, and children who live with this often devastating disease. The Organization's goals are to increase awarene... Details >
The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease ... Details >