NAPE, Inc.

October 4-5, Salt Lake City, Utah
2008 Annual Conference

Conference Schedule (updated 8/25/08)

Conference Registration Form

PXE Awareness newsletter

About NAPE

Welcome to the NAP_xE website.

NAPE is an organization committed to the support for people who have Pseudoxanthoma Elasticum (PXE). Pseudoxanthoma Elasticum is an inherited disorder that affects the skin, the retina of the eyes and the cardiovascular system. NAPE is headquartered in St. Louis, Missouri. Everyone with PXE and those with an interest in PXE are encouraged to join this organization.

Click here for more information.

Basic PXE Information

PXE was first described about 100 years ago. Initially it was believed to involve only the skin. The skin changes were thought to be cholesterol deposits called xanthomas that can occur in the skin of individuals with high blood cholesterol levels...

Click here for more information.

Questions & Answers

Click here for Questions from PXE patients and Answers by medical doctors and others qualified to respond.

Articles

Feeder Vessel Therapy

The Nature and the Nurture of PXE

"Fruit & Veggies"

Researchers Identified Gene that Causes PXE!

Click here for more

Current Newsletter

Click Here for the most current issue of PXE Awareness.

Membership Information

Membership fees were dropped in order to make the newsletter available to more individuals with PXE. Your contributions to the continuing publication of the newsletter are always more than welcome, as are any contributions to NAPE research and service projects. We need your help to continue our PXE work.

Click here for the membership form.

President's Page

Click here to read the President's Page.

PXE Pals

Click here for Contact Information.

Book/Tape/Film Review

Eat, Drink and Be Healthy

Macular Degeneration

Creative Walking, Inc.

NAPE Links

Online Mendelian Inheritance in Man (OMIM) recessive PXE

Online Mendelian Inheritance in Man (OMIM) dominant PXE

PXE Support Near You

USA - www.napxe.org
France - www.pxefrance.org
Germany - www.pxe-netzwerk.de
Portugal - www.martajacinto.com/pxeportugal
The Netherlands - www.pxe.nl
United Kingdom - www.pxe.org.uk

Updated August 2008