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Rare Diseases

Find an Organization by Health Topic Results: 21-26 of 26 Orgs
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National Urea Cycle Disorders Foundation  External Link

This non-profit organization is dedicated to the identification, treatment and cure of urea cycle disorders. The National Urea Cycle Disorders Foundation (NUCDF) provides information, education and su... Details >

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Pulmonary Hypertension Association  External Link

The Pulmonary Hypertension Association (PHA) is a non-profit health organization, serving patients with pulmonary hypertension, their family members and the medical professionals who treat them. Its m... Details >

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Shwachman-Diamond America  External Link

Shwachman-Diamond America is a nonprofit organized exclusively for charitable, educational and scientific purposes. This organization is established to support and encourage research of SDS by provi... Details >

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Shwachman-Diamond Syndrome Foundation  External Link

The Shwachman-Diamond Syndrome Foundation (formerly Shwachman-Diamond Syndrome International) is a non-profit group that operates on national and international levels. The purpose of the organization... Details >

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Society for Progressive Supranuclear Palsy  External Link

This nonprofit organization offers information on progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD) and support to persons with CBD, their families, and their caregivers. Throug... Details >

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Vasculitis Foundation  External Link

The Vasculitis Foundation (Formerly the Wegener's Granulomatosis Association) is a non-profit organization dedicated to providing emotional and informational support to patients with vasculitis, to as... Details >

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