Incontinentia Pigmenti International Foundation, Inc. - NIPF
Organization URL(s)
IPIF@IPIF.orgwww.imgen.bcm.tmc.edu/IPIF/NIPFfoundation%20description.htm
Other Contact Information
30 East 72nd Street
Sixteenth Floor
New York,
NY 10021
212-452-1231 (Voice)
212-452-1406 (FAX)
Description
Founded in 1995, the Incontinentia Pigmenti International Foundation, Inc. is a non-profit organization of patients, physicians, educators, parents, relatives, and volunteers striving to take leadership in supporting research, education, and funding for this disorder. IPIF provides information and support for patients and families in the United States and worldwide.