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Browse this page for information about national and regional family support conferences and workshops, participants directory, and referral services for EDs.... Details >

National Foundation for Ectodermal Dysplasias  

Also available in: Spanish 

A general overview of Guillain-Barre syndrome that describes the disorder and its treatment, prognosis, and research information. A list of organizations that may provide additional information and re... Details >

National Institute of Neurological Disorders and Stroke, National Institutes of Health

This page provides a list of organizations in NORD's database.... Details >

National Organization for Rare Disorders, Inc.  

A general overview of Joubert syndrome that includes a description of the disorder, and treatment, prognosis and research information. Suggested reading for more in-depth information and a list of ref... Details >

National Institute of Neurological Disorders and Stroke, National Institutes of Health

Also available in: Spanish 

List of information and publications related to neurological diseases available from the National Institute of Neurological Disorders and Stroke, National Institutes of Health (NINDS) Office of Scient... Details >

National Institute of Neurological Disorders and Stroke, National Institutes of Health

This searchable database has reports on more than 1,500 rare diseases.... Details >

National Organization for Rare Disorders, Inc.  

The Rare Diseases Clinical Research Database was developed by the Office of Rare Diseases at the National Institutes of Health. This database provides you information about ongoing or planned research... Details >

Office of Rare Diseases, National Institutes of Health

This page links to information about rare diseases, including definitions, causes, treatments, and publications.... Details >

Office of Rare Diseases, National Institutes of Health