Data Privacy in Personalized Healthcare Research

Index of Slides : Graphic Version 800x600

1. Data Privacy in Personalized Healthcare Research
2. Introduction
3. HIPAA - Secondary Data Sharing
4. HIPAA Safe Harbor
5. HIPAA Safe Harbor
6. DNA Re-identification
7. Genealogy Re-identification (Malin 2006)
8. Understanding Re-identification
9. HIPAA Statistical / Scientific Standard
10. Formal Protection
11. Example: Trails ((Malin & Sweeney, 2001; 2004, 2005, Malin & Airoldi 2006, Malin 2007)
12. A Solution: STRANON (Malin & Sweeney, AMIA 2005, ICDE 2006)
13. Walkthrough
14. Walkthrough
15. Walkthrough
16. Experimental Validation (Malin & Sweeney AMIA 2000, JBI 2004, AMIA 2006, Malin AIIM 2007)
17. Experiment (k = 5)
18. In Detail: Cystic Fibrosis (1149 patients, 174 hospitals)
19. Benefit: Quantified Risk
20. Complementing Technology
21. HIPAA Limited Data Set
22. The Vanderbilt DNA Databank
23. Example De-identified Medical Record
24. Combination of Technology and Policy
25. Conclusions / Recommendations

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