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Birth Defect
Angioma Alliance 
Angioma Alliance is a non-profit international patient advocacy organization created by people affected by cavernous angioma (cerebral cavernous malformation). The organization works to inform and sup... Details >
Beckwith-Wiedemann Support Network
Beckwith-Wiedemann Syndrome (BWS) is a congenital growth related disorder. There are roughly thirty characteristics which can be associated with BWS. Most often seen are enlarged tongue, umbilical h... Details >
Birth Defect Research for Children, Inc.
Birth Defect Research for Children provides information and support to families of children with birth defects. BDRC sponsors research on birth defects caused by exposures to environmental agents--dr... Details >
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support
CHERUBS is a volunteer organization that provides support, information and resources related to Congenital Diaphragmatic Hernia (CDH). Membership in the organization is open to adult survivors and par... Details >
Children's PKU Network
Children's PKU Network is a nonprofit agency founded in 1991 by the parents of a child diagnosed with PKU (Phenylketonuria). The agency offers support through various programs to assist families with... Details >
International Joseph Diseases Foundation, Inc.
Established in 1977 as a not-for-profit voluntary organization, the International Joseph Diseases Foundation is dedicated to assisting individuals who are affected by or may be at risk for Joseph Dise... Details >
Klippel-Trenaunay Syndrome Support Group
The Klippel-Trenaunay Syndrome Support Group's mission is to provide support for K-T Syndrome patients and their families. Their objectives in accomplishing this mission are: to act as a support grou... Details >
KS&A - Klinefelter Syndrome and Associates
KS&A’s mission is to help individuals with one or more extra X and/or Y chromosomes and their families lead fuller and more productive lives.... Details >
March of Dimes Birth Defects Foundation
The March of Dimes Birth Defects Foundation was established in 1938. Its mission is to improve the health of babies by preventing birth defects and infant mortality. The mission is carried out throu... Details >
Myelin Project
The Myelin Project is a non-profit organization, the goal of which is to accelerate research on the remyelination of the central nervous system. Successful research in this area will help those suffer... Details >