Proteus Syndrome Foundation
Organization URL(s)
www.proteus-syndrome.org
Other Contact Information
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719-264-8445 (Voice)
Description
The Proteus Syndrome Foundation is a non-profit organization founded to support and educate families and professionals, and to raise money for research to find a cure for individuals living with Proteus Syndrome. The main goals of the Foundation are patient and family support, public education, medical staff education, promotion and funding of research, and ultimately the treatment and cure of Proteus Syndrome.
Online Resources
- Definition of Proteus Syndrome
http://www.proteus-syndrome.org/html/proteus/definition.htm - Glossary of Terms: Proteus Syndrome Foundation
http://www.proteus-syndrome.org/html/proteus/glossary.htm - Symptoms of Proteus Syndrome
http://www.proteus-syndrome.org/html/proteus/symptoms.htm
Print Resources
The organization provides consumer and professional information about Proteus Syndrome, a condition which involves atypical growth of the bones, skin, head and a variety of other symptoms. Information about the condition includes definition, symptoms, and glossary of terms.