Xeroderma Pigmentosum Society - XPS

Organization URL(s)

www.xps.orgxps@xps.org
  

Other Contact Information

437 Snydertown Road
Craryville, NY 12521

518-851-2612 (Voice)
518-851-2612 (FAX, )

Description

The Xeroderma Pigmentosum Society was founded to raise awareness about XP, a life-threatening, sun-sensitive, genetic disorder; to provide support to patients and their families through information, protection and services; and to promote research for a cure. XPS also offers a unique, international summer camp for families conducted in a UV-safe environment.

Online Resources

• Xeroderma Pigmentosum: Information for Parents and Caregivers
  http://www.xps.org/parents_caregivers.htm 
  

Print Resources

"Understanding XP"; newsletter, "XP Report" all at no charge.

Related Topics

Chronic Diseases Funding Sources Genetics Speaker's Bureau Skin Diseases

Review Date

Thu Apr 7, 2005