Stickler Involved People - SIP
sip@sticklers.org
www.sticklers.org 
Other Contact Information
15 Angelina
Augusta,
KS 67010
316-775-2993 (Voice, )
Description
Stickler Involved People (SIP) is a national network whose purpose is to increase awareness of Stickler syndrome by educating medical professionals, educators, and people with Stickler syndrome and their families. Because Stickler syndrome manifests itself differently in each person, it is very difficult to diagnose. The Network's education material includes information on the variety, and severity of symptoms associated with Stickler Syndrome, and a diagnostic aid for physicians, specifically neonatologists and pediatric geneticists and rheumotologists. SIP responds to inquiries by mail, telephone, and electronic mail. SIP provides an annual conference to help educate and has a list server to promote one-on-one contacts. Contact SIP for additional information.
Print Resources
Quarterly Newsletter (free with membership), journal reprints, and the book "Stickler - the Elusive Syndrome". A publication list is available.
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